Sigmoid Social

AaronHow do you know if you've popped a rib "out of socket"?I sneezed this morning and thought I pulled a muscle, but the pain is intense and hasn't let up all day. I started to wonder if it was something more when I sneezed again this evening, and there was a very clear popping sensation accompanied by even more intense pain. It's right around the area where my rib would meet the cartilage next to my sternum.I've been unable to cough effectively all day long. Every cough, even a mild one, is super painful. Meanwhile, I feel like I'm suffocating or drowning because I can't clear my airway effectively.If it is a dislocated rib, what do I do? How do I fix it or at least get the pain to ease up? How do I stop this from happening again?<a href="https://techhub.social/tags/EhlersDanlos" class="mention hashtag" rel="nofollow noopener" target="_blank">#EhlersDanlos</a> <a href="https://techhub.social/tags/EhlersDanlosSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#EhlersDanlosSyndrome</a> <a href="https://techhub.social/tags/EDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#EDS</a> <a href="https://techhub.social/tags/dislocation" class="mention hashtag" rel="nofollow noopener" target="_blank">#dislocation</a> <a href="https://techhub.social/tags/ChestPain" class="mention hashtag" rel="nofollow noopener" target="_blank">#ChestPain</a> <a href="https://a.gup.pe/u/eds" class="u-url mention" rel="nofollow noopener" target="_blank">@eds</a>

This Account Kills FascistsWell, I'm sick AGAIN. According to my calculations, I've been healthy for three weeks and two days this entire year so far. It seems I have no immune system left anymore.I'm going to have to rethink how/if I leave the house.I never stopped masking, btw.<a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillness</a> <a href="https://mastodon.social/tags/ehlersdanlos" class="mention hashtag" rel="nofollow noopener" target="_blank">#ehlersdanlos</a> <a href="https://mastodon.social/tags/ehlersdanlossyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#ehlersdanlossyndrome</a>

Ruth Cheesley (she/her)Really fun swim training session with <a href="https://pixelfed.social/discover/tags/IpswichTriathlonClub?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#IpswichTriathlonClub</a> this morning, focusing on streamlining breathing and really getting used to minimal extra head rotation to improve efficiency. Lots of water up my nose and in my mouth but I'm getting the hang of it finally! Did a timed 300m warm up swim which came out at just over 7 minutes, so might have to revise my expected swim time for the sprint triathlon in the summer! <a href="https://pixelfed.social/discover/tags/TriathlonTraining?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#TriathlonTraining</a> <a href="https://pixelfed.social/discover/tags/Triathlon?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#Triathlon</a> <a href="https://pixelfed.social/discover/tags/Swimming?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#Swimming</a> <a href="https://pixelfed.social/discover/tags/SwimTraining?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#SwimTraining</a> <a href="https://pixelfed.social/discover/tags/EhlersDanlosSyndrome?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#EhlersDanlosSyndrome</a> <a href="https://pixelfed.social/discover/tags/EDSAthlete?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#EDSAthlete</a> <a href="https://pixelfed.social/discover/tags/ThisGirlCan?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#ThisGirlCan</a>

Ruth Cheesley (she/her)Testing out the new trisuit, new helmet and my cycling glasses before using them in anger! Suit will take a bit of getting used to as it's got a lot less padding than my bib shorts, and the helmet is great but haven't quite got it dialed in for comfort quite yet, needs a bit more tweaking! Loving the TrainingPeaks Virtual visuals and especially the super handy little tick that tells you how many of each interval you've completed, so simple but so helpful! <a href="https://pixelfed.social/discover/tags/TriathlonTraining?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#TriathlonTraining</a> <a href="https://pixelfed.social/discover/tags/TrainingPeaksVirtual?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#TrainingPeaksVirtual</a> <a href="https://pixelfed.social/discover/tags/TPVirtual?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#TPVirtual</a> <a href="https://pixelfed.social/discover/tags/TrainingPeaks?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#TrainingPeaks</a> <a href="https://pixelfed.social/discover/tags/Triathlon?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#Triathlon</a> <a href="https://pixelfed.social/discover/tags/NewHelmetRide?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#NewHelmetRide</a> <a href="https://pixelfed.social/discover/tags/NewHelmetDay?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#NewHelmetDay</a> <a href="https://pixelfed.social/discover/tags/EhlersDanlosAthlete?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#EhlersDanlosAthlete</a> <a href="https://pixelfed.social/discover/tags/EDSAthlete?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#EDSAthlete</a> <a href="https://pixelfed.social/discover/tags/EhlersDanlosSyndrome?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#EhlersDanlosSyndrome</a> <a href="https://pixelfed.social/discover/tags/ThisGirlCan?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#ThisGirlCan</a> <a href="https://pixelfed.social/discover/tags/MyFirstTriathlon?src=hash" class="u-url hashtag" rel="nofollow noopener" target="_blank">#MyFirstTriathlon</a>

Chronic Illness Humor Funny<a href="https://mastodon.social/tags/eds" class="mention hashtag" rel="nofollow noopener" target="_blank">#eds</a> <a href="https://mastodon.social/tags/edsmemes" class="mention hashtag" rel="nofollow noopener" target="_blank">#edsmemes</a> <a href="https://mastodon.social/tags/edshumor" class="mention hashtag" rel="nofollow noopener" target="_blank">#edshumor</a> <a href="https://mastodon.social/tags/edsfunny" class="mention hashtag" rel="nofollow noopener" target="_blank">#edsfunny</a> <a href="https://mastodon.social/tags/heds" class="mention hashtag" rel="nofollow noopener" target="_blank">#heds</a> <a href="https://mastodon.social/tags/hedsmemes" class="mention hashtag" rel="nofollow noopener" target="_blank">#hedsmemes</a> <a href="https://mastodon.social/tags/hedshumor" class="mention hashtag" rel="nofollow noopener" target="_blank">#hedshumor</a> <a href="https://mastodon.social/tags/ehlersdanlossyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#ehlersdanlossyndrome</a> <a href="https://mastodon.social/tags/ehlersdanlos" class="mention hashtag" rel="nofollow noopener" target="_blank">#ehlersdanlos</a>

Ruth Cheesley (she/her)Time for a pre race <a href="https://mastodon.online/tags/flatlay" class="mention hashtag" rel="nofollow noopener" target="_blank">#flatlay</a> before the @dorneylake duathlon tomorrow! Checked in, kit checked, bike checked, time to relax! Quite nervous as I'm very new to the bike and haven't been on track with my running at all this month, the goal is to go out there and try something totally new, and hopefully have a bit of fun in the process!<a href="https://mastodon.online/tags/Duathlon" class="mention hashtag" rel="nofollow noopener" target="_blank">#Duathlon</a> <a href="https://mastodon.online/tags/ThisGirlCan" class="mention hashtag" rel="nofollow noopener" target="_blank">#ThisGirlCan</a> <a href="https://mastodon.online/tags/ehlersdanlos" class="mention hashtag" rel="nofollow noopener" target="_blank">#ehlersdanlos</a> <a href="https://mastodon.online/tags/ehlersdanloswarrior" class="mention hashtag" rel="nofollow noopener" target="_blank">#ehlersdanloswarrior</a> <a href="https://mastodon.online/tags/EhlersDanlosSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#EhlersDanlosSyndrome</a> <a href="https://mastodon.online/tags/ehlersdanlosathletes" class="mention hashtag" rel="nofollow noopener" target="_blank">#ehlersdanlosathletes</a> <a href="https://mastodon.online/tags/EDSAthlete" class="mention hashtag" rel="nofollow noopener" target="_blank">#EDSAthlete</a> <a href="https://mastodon.online/tags/EDSAthletes" class="mention hashtag" rel="nofollow noopener" target="_blank">#EDSAthletes</a> <a href="https://mastodon.online/tags/running" class="mention hashtag" rel="nofollow noopener" target="_blank">#running</a> <a href="https://mastodon.online/tags/cycling" class="mention hashtag" rel="nofollow noopener" target="_blank">#cycling</a> <a href="https://mastodon.online/tags/VeganRunners" class="mention hashtag" rel="nofollow noopener" target="_blank">#VeganRunners</a>

BroadwaybabytoWhat’s happened to curiosity in medicine? A story of two appointments. If you’re a healthcare worker and your patient says they’re in pain, a medication isn’t working or something doesn’t seem right … listen to them. If what they’re saying seems “odd”… don’t dismiss them out of hand. Get curious. Ask questions. Listen to the patient.The human body is incredible and unique. We all respond in different ways - and we learn more about the human condition every day. If something isn’t “adding up”… it could be a missed diagnosis. Here’s one of my most frustrating examples:I go to the doctor with a strange type of infection that is usually only seen in end stage AIDS patients.Doctor: “Have you been tested for HIV?”Me: “Yes - it was negative.”Doctor: “huh. You sure? Let’s test you again.”It comes back negative AGAINMe: “so what now?”Doctor: “I don’t know. That’s really weird. Here’s the medication we would give you IF you had AIDS.”That was IT. No follow up. Zero curiosity. No testing to determine WHY I had an infection only seen in AIDS patients when I did not have AIDS. Heck they wouldn’t even run an immune panel to take a closer look at my CD4 and CD8 count. It was just “sorry about your luck but this is not my problem.”Contrast that with one of my BEST experiences with a VERY curious doctor:I was there for suspected POTS which I was diagnosed with. In the process the cardiologist found an aneurysm and felt that given my age, lifestyle and persistently LOW blood pressure it was “odd” for me to have one.She gave me a huge questionnaire of seemingly unrelated questions to fill out - about everything from dental issues to gynaecology and what I was like as a young child.She reviewed the questionnaire with me and really took the time to LISTEN. We talked about previous illnesses, injuries, surgeries and how I felt in my body. I was treated like the expert - which had never happened before.I left that appointment exhausted and stunned as it was the first time a doctor had worked so collaboratively with me. I was referred to genetics where I was finally given the diagnosis that put all the missing pieces together - EDS (Ehlers Danlos Syndrome).The signs had been there for years - but no one ever slowed down and spoke to me long enough to realize it. No one was curious enough. No one asked me what it was like to be in MY body. It seems so simple - yet it’s a skill many healthcare workers lack.My ask of them tonight is to listen to your patient. Let them be partners in their care. Respect that while they may not have a medical degree - they are the experts in their own body and can help you if you let them.Be curious. Always.<a href="https://zeroes.ca/tags/curiousity" class="mention hashtag" rel="nofollow noopener" target="_blank">#curiousity</a> <a href="https://zeroes.ca/tags/medicine" class="mention hashtag" rel="nofollow noopener" target="_blank">#medicine</a> <a href="https://zeroes.ca/tags/healthcare" class="mention hashtag" rel="nofollow noopener" target="_blank">#healthcare</a> <a href="https://zeroes.ca/tags/misdiagnosis" class="mention hashtag" rel="nofollow noopener" target="_blank">#misdiagnosis</a> <a href="https://zeroes.ca/tags/gaslighting" class="mention hashtag" rel="nofollow noopener" target="_blank">#gaslighting</a> <a href="https://zeroes.ca/tags/believepatients" class="mention hashtag" rel="nofollow noopener" target="_blank">#believepatients</a> <a href="https://zeroes.ca/tags/believewomen" class="mention hashtag" rel="nofollow noopener" target="_blank">#believewomen</a> <a href="https://zeroes.ca/tags/chronicillness" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillness</a> <a href="https://zeroes.ca/tags/zebra" class="mention hashtag" rel="nofollow noopener" target="_blank">#zebra</a> <a href="https://zeroes.ca/tags/EDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#EDS</a> <a href="https://zeroes.ca/tags/ehlersdanlossyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#ehlersdanlossyndrome</a> <a href="https://zeroes.ca/tags/pots" class="mention hashtag" rel="nofollow noopener" target="_blank">#pots</a> <a href="https://zeroes.ca/tags/mcas" class="mention hashtag" rel="nofollow noopener" target="_blank">#mcas</a> <a href="https://zeroes.ca/tags/DysautonomiaAwarenessMonth" class="mention hashtag" rel="nofollow noopener" target="_blank">#DysautonomiaAwarenessMonth</a> <a href="https://zeroes.ca/tags/Dysautonomia" class="mention hashtag" rel="nofollow noopener" target="_blank">#Dysautonomia</a> <a href="https://zeroes.ca/tags/ableism" class="mention hashtag" rel="nofollow noopener" target="_blank">#ableism</a> <a href="https://zeroes.ca/tags/disability" class="mention hashtag" rel="nofollow noopener" target="_blank">#disability</a> <a href="https://zeroes.ca/tags/disabled" class="mention hashtag" rel="nofollow noopener" target="_blank">#disabled</a> <a href="https://zeroes.ca/tags/misogyny" class="mention hashtag" rel="nofollow noopener" target="_blank">#misogyny</a>

Ruth Cheesley (she/her)Just over a year since I was last able to do a pump class with a barbell due to the movement limitations from the fracture and repair .... Absolutely delighted to be back, started with light weight to see what limitations there still are but it seems the only difficulty is weight bearing in full extension, like planks and mountain climbers which I did from the box instead of the floor. Progress! 🎉<a href="https://mastodon.online/tags/BrokenWrist" class="mention hashtag" rel="nofollow noopener" target="_blank">#BrokenWrist</a> <a href="https://mastodon.online/tags/ORIFRehab" class="mention hashtag" rel="nofollow noopener" target="_blank">#ORIFRehab</a> <a href="https://mastodon.online/tags/ORIFWrist" class="mention hashtag" rel="nofollow noopener" target="_blank">#ORIFWrist</a> <a href="https://mastodon.online/tags/FracturedWrist" class="mention hashtag" rel="nofollow noopener" target="_blank">#FracturedWrist</a> <a href="https://mastodon.online/tags/Rehab" class="mention hashtag" rel="nofollow noopener" target="_blank">#Rehab</a> <a href="https://mastodon.online/tags/EDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#EDS</a> <a href="https://mastodon.online/tags/EhlersDanlosSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#EhlersDanlosSyndrome</a> <a href="https://mastodon.online/tags/ThisGirlCan" class="mention hashtag" rel="nofollow noopener" target="_blank">#ThisGirlCan</a>

Ruth Cheesley (she/her)First run-off-the-bike workout today and I didn't fall over! 😂Zone 2 30 minute ride followed by 5 minute zone 2 run, broken toe is a bit less sensitive now so 5 minutes was manageable. Challenging dashing across the gym floor though, but I'm sure I'll get used to it! <a href="https://mastodon.online/tags/Cycling" class="mention hashtag" rel="nofollow noopener" target="_blank">#Cycling</a> <a href="https://mastodon.online/tags/Running" class="mention hashtag" rel="nofollow noopener" target="_blank">#Running</a> <a href="https://mastodon.online/tags/Duathlon" class="mention hashtag" rel="nofollow noopener" target="_blank">#Duathlon</a> <a href="https://mastodon.online/tags/DuathlonTraining" class="mention hashtag" rel="nofollow noopener" target="_blank">#DuathlonTraining</a> <a href="https://mastodon.online/tags/EDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#EDS</a> <a href="https://mastodon.online/tags/EhlersDanlosSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#EhlersDanlosSyndrome</a> <a href="https://mastodon.online/tags/ThisGirlCan" class="mention hashtag" rel="nofollow noopener" target="_blank">#ThisGirlCan</a> <a href="https://mastodon.online/tags/VeganRunners" class="mention hashtag" rel="nofollow noopener" target="_blank">#VeganRunners</a> <a href="https://mastodon.online/tags/VeganCyclists" class="mention hashtag" rel="nofollow noopener" target="_blank">#VeganCyclists</a>

Ruth Cheesley (she/her)Earlier this month I wrote and recorded an audio version of a blog post for <a href="https://mastodon.online/tags/Breathworks" class="mention hashtag" rel="nofollow noopener" target="_blank">#Breathworks</a> as part of <a href="https://mastodon.online/tags/PainAwarenessMonth" class="mention hashtag" rel="nofollow noopener" target="_blank">#PainAwarenessMonth</a> about my journey with Ehlers-Danlos Syndrome and how I've worked with the many challenges faced since my big health crash around 15 years ago, leading to doing two ultramarathons. Have a read, or have a listen (it's linked at the top of the page to Breathworks' Soundcloud).<a href="https://www.breathworks-mindfulness.org.uk/blog/living-with-ehlers-danlos-how-i-ran-50-miles-to-support-breathworks" rel="nofollow noopener" translate="no" target="_blank">https://www.breathworks-mindfulness.org.uk/blog/living-with-ehlers-danlos-how-i-ran-50-miles-to-support-breathworks</a><a href="https://mastodon.online/tags/EhlersDanlosSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#EhlersDanlosSyndrome</a> <a href="https://mastodon.online/tags/ultrarunning" class="mention hashtag" rel="nofollow noopener" target="_blank">#ultrarunning</a> <a href="https://mastodon.online/tags/running" class="mention hashtag" rel="nofollow noopener" target="_blank">#running</a> <a href="https://mastodon.online/tags/EDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#EDS</a> <a href="https://mastodon.online/tags/breathworks" class="mention hashtag" rel="nofollow noopener" target="_blank">#breathworks</a> <a href="https://mastodon.online/tags/Endure24" class="mention hashtag" rel="nofollow noopener" target="_blank">#Endure24</a>

Cassian [main]How many bones have you broken, and are you hypermobile?This is a poll for everyone, but I'm tagging a few specific groups to make sure I get a good sample!<a href="https://eldritch.cafe/tags/poll" class="mention hashtag" rel="nofollow noopener" target="_blank">#poll</a> <a href="https://eldritch.cafe/tags/polls" class="mention hashtag" rel="nofollow noopener" target="_blank">#polls</a> <a href="https://eldritch.cafe/tags/hypermobility" class="mention hashtag" rel="nofollow noopener" target="_blank">#hypermobility</a> <a href="https://eldritch.cafe/tags/hypermobile" class="mention hashtag" rel="nofollow noopener" target="_blank">#hypermobile</a> <a href="https://eldritch.cafe/tags/hEDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#hEDS</a> <a href="https://eldritch.cafe/tags/EDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#EDS</a> <a href="https://eldritch.cafe/tags/EhlersDanlos" class="mention hashtag" rel="nofollow noopener" target="_blank">#EhlersDanlos</a> <a href="https://eldritch.cafe/tags/EhlersDanlosSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#EhlersDanlosSyndrome</a>

BroadwaybabytoWhen I was 21 I was told that pregnancy could (and probably would) kill me AND that I was likely infertile. I asked to have my tubes tied & was told “you’re too young. You may change your mind & want kids.”🧵 on reproductive health, bodily autonomy & misogyny in medicine.First off - this was devastating news at such a young age. I had stage 4 endometriosis, a tipped uterus, adenomyosis & other health issues that made pregnancy unlikely AND dangerous. I was told in the event I became pregnant - they would have to recommend termination. Abortion would ALSO be risky to my health - though less risky than carrying a pregnancy to term. Given the threat it seemed perfectly reasonable to request a more fail safe method of birth control (tubal ligation). I was having laproscopic surgery anyways to try and remove some of the endometriosis - so they were literally already going to be operating. Tying my tubes was a negligible risk compared to the rest of the surgery. Imagine my shock when I was informed they wouldn’t do it because I might change my mind and want kids.I asked them whether my “changing my mind” would change my prognosis or their recommendation. Nope. They would still recommend termination.This was the first time I truly understood how deep misogyny and patriarchal values ran in medicine. My theoretical ability to bear children - whether I wanted them or not and whether it was safe or not - was more important than my health and my life. It was infuriating. An IUD wasn’t an option for a myriad of reasons so I was stuck on hormonal birth control that I didn’t tolerate well. I was also getting sicker from the endometriosis & adenomyosis… and it quickly became clear a hysterectomy would be best for me.Given doctors weren’t willing to entertain a tubal ligation - you can only imagine how they felt about a hysterectomy. Same tired arguments about how I could change my mind, I was too young, what if I met a man who wanted kids blah blah blah. I got these responses from male and female physicians - all of whom were willing to let my health significantly deteriorate rather than “make me barren”. None of whom listened to what I wanted to do with MY body. I continued to push for surgery because I knew it was what I needed - and was forced to undergo multiple psych evaluations. I heard everything from “don’t you want to be a mother” to “what if you meet the man of your dreams & he leaves you because you can’t have kids?.” How is it appropriate to ask ANY woman these questions? Let alone a woman who has been told - repeatedly - that pregnancy would put her life in jeopardy? It was as though they thought something was wrong with me because I didn’t want to risk my life for a hypothetical baby. 1/2<a href="https://zeroes.ca/tags/womenshealth" class="mention hashtag" rel="nofollow noopener" target="_blank">#womenshealth</a> <a href="https://zeroes.ca/tags/endometriosis" class="mention hashtag" rel="nofollow noopener" target="_blank">#endometriosis</a> <a href="https://zeroes.ca/tags/EDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#EDS</a> <a href="https://zeroes.ca/tags/ehlersdanlossyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#ehlersdanlossyndrome</a> <a href="https://zeroes.ca/tags/pregnancy" class="mention hashtag" rel="nofollow noopener" target="_blank">#pregnancy</a> <a href="https://zeroes.ca/tags/gynecology" class="mention hashtag" rel="nofollow noopener" target="_blank">#gynecology</a> <a href="https://zeroes.ca/tags/obgyn" class="mention hashtag" rel="nofollow noopener" target="_blank">#obgyn</a> <a href="https://zeroes.ca/tags/abortion" class="mention hashtag" rel="nofollow noopener" target="_blank">#abortion</a> <a href="https://zeroes.ca/tags/reproductivehealth" class="mention hashtag" rel="nofollow noopener" target="_blank">#reproductivehealth</a> <a href="https://zeroes.ca/tags/reproductiverights" class="mention hashtag" rel="nofollow noopener" target="_blank">#reproductiverights</a> <a href="https://zeroes.ca/tags/abortionIShealthcare" class="mention hashtag" rel="nofollow noopener" target="_blank">#abortionIShealthcare</a> <a href="https://zeroes.ca/tags/patriarchy" class="mention hashtag" rel="nofollow noopener" target="_blank">#patriarchy</a> <a href="https://zeroes.ca/tags/misogyny" class="mention hashtag" rel="nofollow noopener" target="_blank">#misogyny</a> <a href="https://zeroes.ca/tags/Disability" class="mention hashtag" rel="nofollow noopener" target="_blank">#Disability</a> <a href="https://zeroes.ca/tags/Ableism" class="mention hashtag" rel="nofollow noopener" target="_blank">#Ableism</a> <a href="https://zeroes.ca/tags/Denial" class="mention hashtag" rel="nofollow noopener" target="_blank">#Denial</a> <a href="https://zeroes.ca/tags/PublicHealth" class="mention hashtag" rel="nofollow noopener" target="_blank">#PublicHealth</a> <a href="https://zeroes.ca/tags/InfectionControl" class="mention hashtag" rel="nofollow noopener" target="_blank">#InfectionControl</a> <a href="https://zeroes.ca/tags/Eugenics" class="mention hashtag" rel="nofollow noopener" target="_blank">#Eugenics</a> <a href="https://zeroes.ca/tags/SafeHealthcare" class="mention hashtag" rel="nofollow noopener" target="_blank">#SafeHealthcare</a> <a href="https://zeroes.ca/tags/MaskUp" class="mention hashtag" rel="nofollow noopener" target="_blank">#MaskUp</a> <a href="https://zeroes.ca/tags/Spoonie" class="mention hashtag" rel="nofollow noopener" target="_blank">#Spoonie</a> <a href="https://zeroes.ca/tags/Discrimination" class="mention hashtag" rel="nofollow noopener" target="_blank">#Discrimination</a> <a href="https://zeroes.ca/tags/Dysautonomia" class="mention hashtag" rel="nofollow noopener" target="_blank">#Dysautonomia</a> <a href="https://zeroes.ca/tags/mecfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#mecfs</a> <a href="https://zeroes.ca/tags/pots" class="mention hashtag" rel="nofollow noopener" target="_blank">#pots</a> <a href="https://zeroes.ca/tags/mcas" class="mention hashtag" rel="nofollow noopener" target="_blank">#mcas</a> <a href="https://zeroes.ca/tags/communitycare" class="mention hashtag" rel="nofollow noopener" target="_blank">#communitycare</a> <a href="https://zeroes.ca/tags/wearamask" class="mention hashtag" rel="nofollow noopener" target="_blank">#wearamask</a> <a href="https://zeroes.ca/tags/chronicillness" class="mention hashtag" rel="nofollow noopener" target="_blank">#chronicillness</a> <a href="https://zeroes.ca/tags/DisabilityRights" class="mention hashtag" rel="nofollow noopener" target="_blank">#DisabilityRights</a> <a href="https://zeroes.ca/tags/hysterectomy" class="mention hashtag" rel="nofollow noopener" target="_blank">#hysterectomy</a> <a href="https://zeroes.ca/tags/hystersisters" class="mention hashtag" rel="nofollow noopener" target="_blank">#hystersisters</a>

morgandawnHypermobility may increase Long Covid risk. Hypermobility is characterized by joints capable of moving beyond the normal range of motion, often due to abnormalities in connective tissue.<a href="https://sfba.social/tags/Covid" class="mention hashtag" rel="nofollow noopener" target="_blank">#Covid</a> <a href="https://sfba.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#LongCovid</a> <a href="https://sfba.social/tags/Hypermobility" class="mention hashtag" rel="nofollow noopener" target="_blank">#Hypermobility</a> <a href="https://sfba.social/tags/EhlersDanlosSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#EhlersDanlosSyndrome</a> <a href="https://sfba.social/tags/Disability" class="mention hashtag" rel="nofollow noopener" target="_blank">#Disability</a> <a href="https://sfba.social/tags/SickTimes" class="mention hashtag" rel="nofollow noopener" target="_blank">#SickTimes</a><a href="https://thesicktimes.org/2024/08/06/double-trouble-hypermobility-may-increase-long-covid-risk/" rel="nofollow noopener" translate="no" target="_blank">https://thesicktimes.org/2024/08/06/double-trouble-hypermobility-may-increase-long-covid-risk/</a>

Tinker ☀️I fucking hate my body. Fucking bullshit loose connecting tissue hypermobile Ehlers Danlos Syndrome trash.Fuck.I go for a light swim. To get started working out again.And my knee dislocates SIDEWAYS just doing a light fucking frogkick. Cause the only thing holding my knee in is a now-torn meniscus.This is why its so difficult to get back into working out. I ALWAYS injure myself. No matter how light I work out.And even if I work out correctly and nothing gets injured everything locks down and I need a regular expensive routine of Ashiatsu foot walking massage just to get range of motion back.Fuck. I'm going to keep at it. Just gotta wait a week while my meniscus heals a bit.Note: If you work out but don't have loose connecting tissues, none of what you know applies to me. None of it. It I follow your advice I will injure myself even worse. "Light" exercise for normal bodies destroys me. But! It you have specific trained experience coaching EDS or living with it, I'd love to hear your advice or perspective. <a href="https://infosec.exchange/tags/EDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#EDS</a> <a href="https://infosec.exchange/tags/ehlersdanlossyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#ehlersdanlossyndrome</a>

Ruth Cheesley (she/her)First time walking a hill since the race without being in pain from the angry <a href="https://mastodon.online/tags/hamstring" class="mention hashtag" rel="nofollow noopener" target="_blank">#hamstring</a> ... Started to make itself known towards the end of the final hill, but that's progress! A couple of weeks back I couldn't actually walk them!🤞 a sign of things to come if I can keep up with the patience! Planning to get back to structured training in August after a two week retreat, until then taking it slow and steady, allowing time for all to heal and recover. <a href="https://mastodon.online/tags/EDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#EDS</a> <a href="https://mastodon.online/tags/EhlersDanlosSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#EhlersDanlosSyndrome</a> <a href="https://mastodon.online/tags/ThisGirlCan" class="mention hashtag" rel="nofollow noopener" target="_blank">#ThisGirlCan</a>

Ruth Cheesley (she/her)Here we go folks! 12 noon tomorrow (Saturday) I start running, 12 noon on Sunday (or there about) I finish. 50 miles is the goal. Sponsorship link >> <a href="https://www.breathworks-mindfulness.org.uk/fundraisers/ruth-endure24" rel="nofollow noopener" translate="no" target="_blank">https://www.breathworks-mindfulness.org.uk/fundraisers/ruth-endure24</a> help me help Breathworks reach more people living with pain and illness!<a href="https://mastodon.online/tags/Endure24" class="mention hashtag" rel="nofollow noopener" target="_blank">#Endure24</a> <a href="https://mastodon.online/tags/UltraMarathon" class="mention hashtag" rel="nofollow noopener" target="_blank">#UltraMarathon</a> <a href="https://mastodon.online/tags/UltraRunning" class="mention hashtag" rel="nofollow noopener" target="_blank">#UltraRunning</a> <a href="https://mastodon.online/tags/EDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#EDS</a> <a href="https://mastodon.online/tags/EDSAthlete" class="mention hashtag" rel="nofollow noopener" target="_blank">#EDSAthlete</a> <a href="https://mastodon.online/tags/EhlersDanlosSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#EhlersDanlosSyndrome</a> <a href="https://mastodon.online/tags/ThisGirlCan" class="mention hashtag" rel="nofollow noopener" target="_blank">#ThisGirlCan</a> <a href="https://mastodon.online/tags/VeganRunners" class="mention hashtag" rel="nofollow noopener" target="_blank">#VeganRunners</a> <a href="https://mastodon.online/tags/Breathworks" class="mention hashtag" rel="nofollow noopener" target="_blank">#Breathworks</a>

Max R. Cerrina (he/him)Anyone used wheelchair service at the airport who is not primarily a wheelchair user? I need it for an upcoming trip, and I am anxious and just want to chat with someone about it and how it works etc. <a href="https://tech.lgbt/tags/disability" class="mention hashtag" rel="nofollow noopener" target="_blank">#disability</a> <a href="https://tech.lgbt/tags/disabled" class="mention hashtag" rel="nofollow noopener" target="_blank">#disabled</a> <a href="https://tech.lgbt/tags/EhlersDanlosSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#EhlersDanlosSyndrome</a> <a href="https://tech.lgbt/tags/MobilityAids" class="mention hashtag" rel="nofollow noopener" target="_blank">#MobilityAids</a>

Ruth Cheesley (she/her)A few pics from last weekend's 4.5 hour run, it was hard going and a sobering reminder that in 6 weeks I'll be doing 4x the distance .... Yikes!Also, dates filled with peanut butter are my new favourite run snack!Keeping on keeping on, active recovery week this week so much shorter runs. Still breaking in the new trainers which I'm just taking slowly. <a href="https://mastodon.online/tags/Running" class="mention hashtag" rel="nofollow noopener" target="_blank">#Running</a> <a href="https://mastodon.online/tags/RunnersOfMastodon" class="mention hashtag" rel="nofollow noopener" target="_blank">#RunnersOfMastodon</a> <a href="https://mastodon.online/tags/EDSAthletes" class="mention hashtag" rel="nofollow noopener" target="_blank">#EDSAthletes</a> <a href="https://mastodon.online/tags/EhlersDanlosSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#EhlersDanlosSyndrome</a> <a href="https://mastodon.online/tags/UltraTraining" class="mention hashtag" rel="nofollow noopener" target="_blank">#UltraTraining</a> <a href="https://mastodon.online/tags/Endure24" class="mention hashtag" rel="nofollow noopener" target="_blank">#Endure24</a>

Granny Art (Shrimp) (Joni)OT for vis.social

Ruth Cheesley (she/her)10 mile run today, was hoping for another hour but at the end of the second 5 mile loop the body was giving very clear 'that's enough for today' signals. 4 hours on the schedule, 3 hours done.The neverending tightrope we walk between living with a long term condition like <a href="https://mastodon.online/tags/EhlersDanlosSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#EhlersDanlosSyndrome</a> and training for endurance events!Delightful to see the bluebells poking their heads up out of the forest floor, and a shame to see the demise of another shoreline tree due to erosion.<a href="https://mastodon.online/tags/running" class="mention hashtag" rel="nofollow noopener" target="_blank">#running</a>

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