Chronic Illness Humor Funny<p><a href="https://mastodon.social/tags/chronic" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronic</span></a> illness <a href="https://mastodon.social/tags/autoimmune" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autoimmune</span></a> <a href="https://mastodon.social/tags/chronically" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronically</span></a> ill <a href="https://mastodon.social/tags/chronic" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronic</span></a> illness humor <a href="https://mastodon.social/tags/chronic" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronic</span></a> illness memes <a href="https://mastodon.social/tags/autoimmunememes" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autoimmunememes</span></a> <a href="https://mastodon.social/tags/chronicillnessmemes" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronicillnessmemes</span></a> <a href="https://mastodon.social/tags/chronicillnesshumor" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronicillnesshumor</span></a> <a href="https://mastodon.social/tags/fibro" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>fibro</span></a> memes <a href="https://mastodon.social/tags/fibromemes" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>fibromemes</span></a> <a href="https://mastodon.social/tags/fibromyalgia" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>fibromyalgia</span></a> <a href="https://mastodon.social/tags/spoonie" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>spoonie</span></a> <a href="https://mastodon.social/tags/spoonie" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>spoonie</span></a> life <a href="https://mastodon.social/tags/spoonie" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>spoonie</span></a> humor <a href="https://mastodon.social/tags/spoonie" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>spoonie</span></a> memes <a href="https://mastodon.social/tags/chronic" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronic</span></a> illness life <a href="https://mastodon.social/tags/autoimmune" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autoimmune</span></a> life<br><a href="https://mastodon.social/tags/dysautonomia" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>dysautonomia</span></a> <a href="https://mastodon.social/tags/autonomic" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autonomic</span></a> <a href="https://mastodon.social/tags/pots" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>pots</span></a> <a href="https://mastodon.social/tags/potsie" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>potsie</span></a></p>
#dysautonomia
1 post1 participant0 posts today
#Dysautonomia and #POTS pals, I just heard about this free, online event via the POTScast:
https://dyscourse.dysproject.org/series/dyscourse-tools-for-managing/landing_page
I'm only familiar with 2 of the speakers but I have a lot of respect for those 2.
dyscourse.dysproject.orgDysCourse: Tools for Managing Autonomic Disorders 2025
Replied in thread
Next organization on my list is the Bateman Horne Center
https://batemanhornecenter.org/
They recently posted a Clinical Care Guide for ME/CFS & Long Covid
They also post helpful videos, like these 2 on Orthostatic Intolerance - I share them a lot!
What is Orthostatic Intolerance? Part 1: Diagnostic Workup
https://www.youtube.com/watch?v=X3Ym8rnYk_4
Part 2: Management
https://www.youtube.com/watch?v=GIkS4w3tIg8
11/n
Bateman Horne CenterBateman Horne CenterImproving the lives impacted by myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), post-viral syndromes, and related comorbidities.
Continued thread
I'm back! 
Next I'll share resources for people who have ME/CFS.
Because of an overlap in symptoms these resources may also help folks who have Long Covid, or who have some kind of orthostatic intolerance like POTS (Postural Orthostatic Tachycardia Syndrome) or NMH (Neurally Mediated Hypotension) - or both!
An umbrella term often used is IACC, Infection Associated Chronic Conditions.
7/n
Replied in thread
I hope these quotes encourage folks to read the whole thing:
https://lithub.com/two-households-both-alike-in-indignity-an-interview-with-anne-ursu/
6/6
Literary Hub · Two Households, Both Alike in Indignity: An Interview with Anne Ursu(I wrote this lying down. I sat at my old desk to write and it was a mistake so I had to lie down. Every time I rewrote this or sent Anne questions I was lying down. I dictated some of my questions…
Long Covid, interesting article
I found this blog post interesting.
The research found 3 themes relating to loneliness in chronic illness.
It then mentions a writing exercise one can do to analyse these in your own situation.
#chronicillness #chroniclife #Spoonielife #hiddenillness #invisibleillness #Spoonies @chronicillness
@spoonies
@disability
@longcovid
#LongCovid @fibromyalgia
#Fibromyalgia #Fibro #FMS #FM #POTS @pots #dysautonomia @dysautonomia @mecfs
#MEcfs #CFS #PwME
1/
US research
Dysautonomia in long COVID is prevalent and could explain the frequency of symptoms
https://www.medrxiv.org/content/10.1101/2025.03.24.25324564v1
#dysautonomia @dysautonomia #pots @pots @longcovid
#LongCovid #PwLC #PostCovidSyndrome #LC #PASC #postcovid
#CovidBrain
@covid19 #COVIDー19 #COVID19 #COVID #COVID_19 #SARSCoV2
medRxiv · Dysautonomia in long COVID is prevalent and could explain the frequency of symptomsBackground Long COVID presents with a variety of symptoms. Some of those symptoms could be related to autonomic dysfunction. Our aim is to evaluate the prevalence of autonomic dysfunction in long COVID patients. Methods We conducted a cross-sectional study and included all consecutive patients enrolled in several clinical research studies. We performed the following autonomic dysfunction markers: heart rate variability, heart rate, systolic and diastolic blood pressure changes during NASA lean test, cardiopulmonary exercise testing and a COMPASS-31 scale. We used linear regression to calculate the contribution of each dysautonomia measure on symptom burden as measured by the modified COVID-19 Yorkshire scale. Results We included 100 patients for this study. Our sample had a mean age of 56+/-11 years, included 53% minorities and 32% were women. Dysautonomia as defined by an abnormal COMPASS-31 was seen in 82%; 95% 72-89 while cardiovascular resting dysautonomia as represented by an abnormal heart rate variability was seen in 60%; 95% 48-70 of the population, orthostatic hypotension in 12% and POTS in 10%. In our adjusted analysis, we found that the beta coefficient for the COMPASS-31 score (0.37) was significant on changes in a self-reported long COVID symptom burden. The orthostatic intolerance and gastrointestinal domains of the COMPASS-31 was associated the highest long COVID symptom burden. Conclusion Dysautonomia is common in long COVID patients and contributes to the overall symptoms seen in long COVID. Identifying dysautonomia has important diagnostic and therapeutic implications.
### Competing Interest Statement
The authors have declared no competing interest.
### Clinical Trial
NA
### Funding Statement
Yes
### Author Declarations
I confirm all relevant ethical guidelines have been followed, and any necessary IRB and/or ethics committee approvals have been obtained.
Yes
The details of the IRB/oversight body that provided approval or exemption for the research described are given below:
All studies were approved by the research ethics committees at the Miami VAHS and NOVA Southeastern University and all participants signed informed consent prior to participation. Miami VA is the IRB of record
I confirm that all necessary patient/participant consent has been obtained and the appropriate institutional forms have been archived, and that any patient/participant/sample identifiers included were not known to anyone (e.g., hospital staff, patients or participants themselves) outside the research group so cannot be used to identify individuals.
Yes
I understand that all clinical trials and any other prospective interventional studies must be registered with an ICMJE-approved registry, such as ClinicalTrials.gov. I confirm that any such study reported in the manuscript has been registered and the trial registration ID is provided (note: if posting a prospective study registered retrospectively, please provide a statement in the trial ID field explaining why the study was not registered in advance).
Yes
I have followed all appropriate research reporting guidelines, such as any relevant EQUATOR Network research reporting checklist(s) and other pertinent material, if applicable.
Yes
Data cannot be shared publicly because it is owned but the Veterans Affairs.
Continued thread
In case it was missed in the post above, this is my updated article:
https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/
My doctor predicts I will die if I don’t leave soon.
I need a solid, safe, home I can go to and recover to at least a stable baseline. It’s not full recovery, but it’s better than a slow death.
Help please 
https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/
#PwME #LongCovid #MECFS #Hypothyroidism #ChronicIllness #Neisvoid #Abuse #Housing #Dysautonomia #SocialWork #MedMastodon #PWLC #MutualAid
#HumanRights #Press #Housing #Journalism #MECFS #SevereME #Abuse #Neglect #MutualAid #Narcissist #Psychopath #Endometriosis #ChronicPain #CostOfLivingCrisis #Melbourne #Australia #DomesticAbuse #DV
@chronicillness @longcovid @neisvoid
@disabilityjustice
@disability @socialwork
@dysautonomia @mutualaid
@mecfs
@chronicpain
@mcas
@australia
@melbourne
Canary · Nearly a year on and severe ME patient Anna is still trapped in life-threatening domestic abuseNearly a year on and severe ME patient Anna is still trapped in life-threatening domestic abuse from Canary on 1 April 2025
PLEASE HELP ME ESCAPE!
Please #boost and share to other platforms.I don’t have energy left (see below).
Seems I’m famous (and real!) and desperate enough to go to the media for help. Yes, the trapped woman in the articles below is me.
Last year:
https://www.thecanary.co/global/world-analysis/2024/05/03/me-cfs-anna-australia/
Now things are worse, I’m much sicker, being neglected and will die without a safe stable #home. Doctor’s words.
If not mentioned in the article, my father is a diagnosed #narcissist with #psychopathic & #antisocial tendencies by a #psychiatrist. He urged me get away from my father asap because he is not a ‘safe person’ & neither are the other family members who lured me back through the promise of help.They didn’t help they made me progressively worse to the point of almost incapacitation at stage of #illness.
A year later:
https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/
I’ve tried every level of government, every service and they simply won’t help.
Are able help? Please ask people in real life if they have somewhere for me to go. Could they take me in (I can pay small rent)? A lot people have ‘big house, not enough money’ problem. I can help!
Is anybody an #advocate? I desperately need help.
I would be incredibly grateful for any help beyond words.
Please read articles for full information.
Thank you for reading.
#PwME #LongCovid #MECFS #Hypothyroidism #ChronicIllness #Neisvoid #Abuse #Housing #Dysautonomia #SocialWork #MedMastodon #PWLC #MutualAid
#HumanRights #Press #Housing #Journalism #MECFS #SevereME #Abuse #Neglect #MutualAid #Narcissist #Psychopath