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#fibromyalgia

3 posts3 participants0 posts today

My "longish break" resulted in a complete energy crash and a pain spike.

The office has cooled by a few degrees, but if I return tonight, I'll feel like I should be on the blog.

So I'm going to crash away from the PC and hope some rest on the sofa means I can complete things more sanely tomorrow.

Ask #BCgovernment #HealthMinister #JosieOsborne : Protect Access to Care for #LongCOVID, ME #CFS & #Fibromyalgia Patients
Thousands of #BritishColumbians living with Long COVID, #MyalgicEncephalomyelitis (ME/CFS) & Fibromyalgia rely on the BC Centre for Long COVID, ME/CFS and Fibromyalgia (BC-CLMF) for care. Many are housebound or live in rural areas. This clinic—accessible only through virtual care—is their only connection to #medical support, education, and physician-guided treatment.

But due to changes to BC’s #MedicalServices Plan coming September 1, 2025, this clinic is at risk of shutting down. If that happens, patients will lose access to essential care. #ERs and #GPs will be further overwhelmed, and there are no viable alternatives. Other programs are too short-term, overbooked, or exclude those with ME/CFS or Fibromyalgia. This clinic is cost-effective, scalable, and already working.

We urge Minister Josie Osborne to act now and secure #sustainable #funding for the BC-CLMF. We don’t need a new program—we need to protect the only system that’s helping. Please don’t abandon BC’s most vulnerable patients. Sign and share to help save the #BCCLMF.

change.org/p/josie-osborne-pro

Change.orgSign the PetitionJosie Osborne: Protect Access to Care for Long COVID, ME/CFS, and Fibromyalgia Patients

[🚫no medical opinions🚫]

I had therapy today for the first time in months (regional Australia has a dire shortage of mental health services), and got to talk with her about how I think I have a touch of the depressions.. she agrees.

She also agrees that it might be SAD, or a VitD deficiency, and is glad I had bloods taken yesterday and will be talking to my endo tomorrow about the results. She didn't have anything to say about the possibility of it being a side effect of my spirolonactone, but I'll ask the endo about that as well.

We did talk about the possibility of it being triggered by Greg leaving or other relationship things and both agree it doesn't seem likely. Or that it's latent grief over my dads death in 2019 being triggered by talking my best friend through his dad's illness and impending passing (we also don't think that's it).

She said that I've done all the good things - deleting tiktok, taking a decreased uni load this semester, talking about it.. and that I just need to keep going back to basics (eating, sleeping, exercising, drinking water), to keep things grounded and continue moving forward..

I did notice that, when we were both about to say I have to keep doing "all the good things", she said "good things" and I said "right things" - so we talked a bit about how those actions don't have a moral value or correctness to them, they're just things I can do that are helpful for my body and ways I can be gentle with myself at the moment.

I have such a headache now, though.. It's also been years since I've come out of therapy with a headache, which I think is indicative of how much I don't want to be there and how much I do need to be there.

Being crazy is hard work.

#audhd#autism#adhd

Fellow Spoonies, I wake up pretty grumpy most mornings (usually my most painful/rough time of the day) and can be quite irritable and generally uncommunicative. Just wondered whether most chronic illness sufferers are similar?

(One of my family members has an issue with it, even though I'm happy to avoid people/interaction until I feel more "human")

Please boost for visibility

Has your overall health declined after #fibromyalgia? I'm including things like getting a cold when you usually wouldn't get one.

I'm getting colds (and sore throat) more frequently; got more health issues on top of the ones I already had; my sinuses get inflamed more frequently; etc, etc, etc.