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#LongCovidKids

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Tom Kindlon

#LongCovid research from the UK:

The importance of diagnosis from the perspectives of young people with Long COVID, their parents, and healthcare professionals

bjgp.org/content/75/suppl_1/bj

#LCKids #LongCovidKids

@longcovid
#PwLC #PostCovidSyndrome #LC #PASC #postcovid
#CovidBrain

British Journal of General Practice · The importance of diagnosis from the perspectives of young people with Long COVID, their parents, and healthcare professionalsBackground Long COVID describes symptoms persisting after an acute COVID-19 infection. Aim This study explores the meaning and importance of a Long COVID diagnosis from the perspectives of children and young people (CYP) with Long COVID, their parents, and relevant professionals. Method CYP and their parents were invited to interview from an initial cohort study. Professionals with experience of working with CYP or those with Long COVID were invited to a focus group. Interviews were carried out with four CYP with Long COVID (all female, aged 10–17 years); three interviews included a parent. Two focus groups were conducted with seven relevant professionals from varying disciplines. Data were analysed thematically using constant comparison techniques. Results Analysis identified the following themes: Diagnosis as a label; No diagnosis, no certainty; Diagnosis facilitate access. Stigma of Long COVID pervaded all themes. The diagnosis of Long COVID has different meaning and significance for parents and HCPs. Families described the diagnosis as a legitimisation of their experiences and a way to access support, but professionals questioned some ways that families use the diagnosis, focusing instead on appropriate treatment according to CYP’s needs. Conclusion For families, Long COVID diagnoses are important for validating and legitimising symptoms, removing uncertainty, and supporting access and participation, particularly in school. While these uses differ from those of healthcare professionals, understanding the importance of a Long COVID diagnosis to families may ensure effective communication, negotiation of an acceptable management plan, and ongoing support for this group.
Broadwaybabyto

“3 of the study’s authors write that almost 6 million US children could be affected by long COVID, which is greater than number of kids with asthma”

6 million chronically ill kids

How many will be gaslit? Pushed to play through the pain? Told they’re “fine”?

What a great time to restrict vaccines.

iflscience.com/first-of-its-ki

IFLScience · First-Of-Its-Kind Study Reveals What Long COVID Looks Like In Young ChildrenBy Laura Simmons
#longcovid#LongCovidKids#chronicillness
clarkiestar

Bit of a day. Youngest teen finally made it to the top of the CAMHS psychiatry waiting list. Gruelling two hour long assessment in which she was fully mute. First hour was a battle royale between me and the psychiatrist. I bloody won in the end 💪. Fuck it’s hard advocating for a mute autistic traumatised burnt-out depressed anxious long covid suffering child. #getmeadrink

#actuallyautistic#advocacy#LongCovidKids
Tom Kindlon

Bateman Horne Center:

Part 2: Amy Mooney, MS, OTR/L, shares insights on managing Long COVID & ME/CFS in children.
⚡ Understanding symptoms & challenges
🛠️ Breaking the “Push-Crash” cycle
📚 Case examples & pacing tips

👉 Watch the full presentation: loom.ly/44buqr8
#lckids #longcovidkids #LongCOVID #MECFS @mecfs @longcovid

loom.ly- YouTubeEnjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.
*
Denis - The COVID info guy -

Tests show emotional, behavioral problems in adolescents with long COVID.

"A clinical survey of 85 pediatric long-COVID patients in Bavaria, Germany, reveals high levels of fatigue, loss of motivation, difficulty concentrating and maintaining attention, worsened mood, and greater anxiety"

Source: cidrap.umn.edu/covid-19/tests-

Study: bmcinfectdis.biomedcentral.com

#LongCOVIDKids @auscovid19

CIDRAPTests show emotional, behavioral problems in adolescents with long COVID
Jeweljam

👀 If you can’t make it it will be on their YouTube afterwards. #CovidIsNotOver #COVIDisAirborne #N95sSaveLives #CleanAirNow #LongCovid #LongCovidKids #TogetherWeCan #ShareTheCare us06web.zoom.us/webinar/regist

ZoomWelcome! You are invited to join a webinar: Exploring Long COVID Treatments: First-line, Promising, and Experimental. After registering, you will receive a confirmation email about joining the webinar.Panelists: David Putrino, PhD - Professor in the Department of Rehabilitation and Human Performance at the Icahn School of Medicine at Mount Sinai in New York City and is the Nash Family Director of the Cohen Center for Recovery from Complex Chronic Illness. David trained as a physiotherapist in Australia before completing a PhD in Neuroscience. Since the beginning of the COVID-19 pandemic in 2020, David has been recognized globally as a leading expert in the assessment, treatment and underlying pathophysiology of Long COVID. His team has managed the care of over 3000 people with Long COVID and published multiple peer-reviewed scientific papers on the topic. In 2019, he was named "Global Australian of the Year" for his contributions to healthcare. Leo Galland, MD - Physician at Leo Galland MD in New York City, international bestselling author, and recipient of the Linus Pauling Award from the Institute of Functional Medicine. Leo has been diagnosing and treating Long COVID patients since 2021 and brings a functional medicine approach to Long COVID management, with areas of focus on the gut microbiome, mitochondrial health, and tickborne diseases. Stuart Malcolm, MD - Physician and Medical Director at RTHM. Clinic Stuart has treated hundreds of Long COVID patients since March of 2020 and brings a wealth of experience, knowledge and a true passion for care to the table. He has a particular interest in endothelial and mitochondrial dysfunction, iron dysregulation, EBV reactivation and SARS-CoV2 viral antigen persistence in this patient group. Jennifer Curtin, MD - RTHM Chief Medical Officer and Cofounder. Jennifer’s area of clinical focus has been ME/CFS, Long COVID, and frequently co-morbid conditions like POTS. She’s a member of the ME/CFS Clinician Coalition and on the Scientific Advisory Board of MEAction. Her patient-centered approach integrates the latest research findings into clinical practice for IACCs.
datum (n=1)

"57% decreased odds of 1 or more PCC symptoms and a 73% decreased odds of 2 or more PCC symptoms" - that's dramatically lower odds of a child suffering:

➡️ unable to remember
➡️ unable to focus
➡️ unable to exercise
➡️ headache
➡️ insomnia
➡️ lightheadedness, fainting
➡️ extreme fatigue
➡️ loss of vivacity, joie de vivre
➡️ personality changes
➡️ hospitalization and death

Protect your children.

Otherwise, if they survive, they will wonder why you didn't protect them, when it costs only the time to get vaccinated, and a few pennies a day N95s and HEPA filters.

Otherwise, you might find yourself mourning the potential you KNEW your child had, and desperately hoping for treatments.

Treatments may never come. Neurons don't come back. Developmental windows close.

Don't be the ghoul that condemns your children, don't strip their future because it's not cool to mask. It might not be cool to wear a bike helmet either. Concussions can't be undone, either. Don't usher your children willingly into suffering and disability.

DON'T FUCKING STACK THE ODDS AGAINST YOUR KIDS.

pmc.ncbi.nlm.nih.gov/articles/

ht/ @augieray mastodon.social/@augieray/1141

PubMed Central (PMC)COVID-19 Vaccination and Odds of Post–COVID-19 Condition Symptoms in Children Aged 5 to 17 YearsDoes COVID-19 mRNA vaccination reduce the occurrence of post–COVID-19 condition (PCC) following SARS-CoV-2 infection in children aged 5 to 17 years? In this case-control study with 622 participants, vaccination was associated with a 57% decreased ...
#vaccines#vaccine#COVID19
Jeweljam

👀 A source of information by/for U.S. folks. Especially important with the new unfortunate Information Dark Age being spearhead by he who I won’t name due to my delicate digestive system. I stand with Americans who never asked for this. #CovidIsNotOver #COVIDisAirborne #N95sSaveLives #CleanAirNow #LongCovid #LongCovidKids #TogetherWeCan #ShareTheCare
open.substack.com/pub/peoplesc

People's CDC · People's CDC, COVID-19, Weather Report, February 24, 2025By People's CDC
Broadwaybabyto

“Doctors routinely misdiagnose or dismiss women’s health issues & moms get written off.

No one listens to them even though they have most information about their child”

Heartbreaking article about the struggle of having a kid with Long Covid.

We must remember that kids lack agency. They can’t make their own healthcare decisions. They need adults to protect them.

All too often they’re gaslit by doctors and their own families, and it causes trauma and additional harm to their health.

May all disabled kiddos have a parent this supportive.

psychologytoday.com/us/blog/ri

Psychology TodayI'm the Mom, But No One Listened to MeMy son had Long COVID. I assumed his situation would be understood, thanks to science. But I discovered that my voice wasn't heard even though it mattered most.
#longcovid#longcovidkids#gaslighting
*
emeritrix

Just one of many inaccuracies (aka lies) in RFK, Jr.'s testimony: he said 6-year-olds have a basically zero risk from Covid. (n.b., the subtitles on the hearing are unclear/wrong on this).

In fact, however, it has been a leading cause of death among children, especially infants, and young people are at the same risk of Long Covid as adults.

RFKJr also, earlier, nattered on about the increase in diabetes, as though it were just about eating the wrong food. In fact, of course, COVID19 is a major contributor to new-onset diabetes.

Here's some links about all that, many from the Pandemic Accountability Project, which rounds up collections of links to information.

COVID-19 is a leading cause of death in children and young people in the US (2023) ox.ac.uk/news/2023-01-31-covid

panaccindex.info/i/153047186/c

panaccindex.info/i/143167496/c

panaccindex.info/i/142946886/c

panaccindex.info/i/139845371/c

panaccindex.info/i/132179637/c

finance.senate.gov/hearings/he

#CovidIsNotOver #LongCovidKids
#USPol #RFKjr

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