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#pwme

15 posts7 participants5 posts today
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"We performed a prospective, open-label pilot trial"

"Six out of 10 patients experienced clinical improvement during follow-up."

"there was a significant correlation between baseline number of NK cells in peripheral blood and clinical improvement"

#MEcfs #PwME #CFS
@mecfs

The MECFS Minnesota Clinic is hosting a panel right now by clinicians sharing Long Covid and MECFS news and care resources!

The clinic treats patients in-person and virtually from 10 different states currently #LongCovid #MECFS #pwME

Join here: teams.microsoft.com/l/meetup-j

Microsoft TeamsJoin conversation

🧵
Patient-reported treatment outcomes in ME/CFS & long COVID

pnas.org/doi/abs/10.1073/pnas.

"results of an ME/CFS and long COVID treatment survey with responses from 3,925 patients"

"This study underscores the symptomatic and therapeutic similarities between #MECFS & #longCOVID"

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #CFS #PwME @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC

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Well, not the happiest intro but I’ll cut/paste this here while I still remember then add a proper intro spoons allowing..⬇️

Please #boost and share to other platforms spoons allowing.

Seems I’m desperate enough to go to the media for help. Yes, the trapped woman in the article below is me.

My story: thecanary.co/global/world-anal

More info on how to help:: buymeacoffee.com/halcionandon/
Beem: Halcionandon

I’ve tried every level of government and they simply won’t help.
- Please ask people if they have a spare room or somewhere to go. Maybe you have somewhere?
- Is anybody a #DisabilityAdvocate? #SocialWorker? Need help.

Please don’t give me contacts for domestic violence orgs. They don’t help disabled people with housing & only offer counselling. Also, that list of disability advocates going around for #Melbourne #Australia (where I am) is outdated - there aren’t any in my catchment. So I’m looking for volunteers with some background.

Thanks for reading

#PwME #LongCovid #MECFS #Hypothyroidism #ChronicIllness #Neisvoid #NacissisticAbuse ##Housing #Dysautonomia #SocialWork #MedMastodon #PWLC #MutualAid
#HumanRights #Press

@mecfs @chronicillness @neisvoid
@disability @disabilityjustice @socialwork @mutualaid
@chronicillness

Canary · Australia's state and services are trapping a woman living with severe ME/CFS in domestic abuseWoman living with severe ME/CFS in Australia trapped in a cycle of violence from domestic abusers to the punitive state & medical services.

It’s my birthday, but I now view time by different measures

I crashed so this is belated, but for my birthday/Stonewall anniversary ask, I received over 40 pro-mask messages of people wearing N95 or similar respirators! I think there are even more, I lost count a few times. Thank you SO much to everyone who participated and helped take care of themselves and their communities.

https://www.illmarks.com/2025-6-28-its-my-birthday-but-i-now-view-time-by-different-measures/